Dear Friends & family,
We are all very eager to see spring arrive this year. The winter has been long and somewhat depressing with one day pretty much the same as the next. Joey either has a bad headache, severe stomach pains or some other ailment that not only takes over Joey's day, but deeply affects all of us. It is unbearable to watch him suffer. Some of his symptoms could be from the GVHD, or from all the medication he takes or perhaps side effects from all the chemotherapy he has had in the past. On the days or times he does feel good we always make the most out if.
When the weather warms up Joey can go outside and I think this should help a little with his mood and with the pain in his joints. I have been trying to find a support group and some counseling for Joey to help him through all of this and was surprised at what task this has turned out to be. I thought with all the children (even around my own home) that have cancer, there would be plenty o f help available. This is not the case, however as with anytime I research a topic I find all kinds of other helpful information that I would have not known about before.
He still is a sweet and thoughtful boy and he has expressed to several times that he is sorry he has to be this way for the family. As if he was letting us down in some way. I do my best to explain that it is just so hard for all of us to see him have to go through this. I cannot promise him that one day he will feel better, but I try my best to make each day the best that it can be. I am always looking for things that he can do (since he still cannot attend school or many other activities) and research ways to help him now.
My goal has been to participate in one fundraiser a year to help bring in funding and awareness for childhood cancer. I can personally count eight children that are somehow connected to me that have or have had cancer. (This is not through any type of support group or organization.) I think that is alarming. I believe I must do something to help fund research for not only the sake of my child, my future grandchildren but for all children.
This year my family is joining efforts with St. Baldrick's on March 16th in Romeo for their head shaving fundraising event! Joey's former home care nurse Melissa sent me a text saying she will be getting her head shaved that day in honor of Joey. We were so touched, we all wanted to get in on the event and raise funds. Joe volunteered to get his had shaved after Joey said this would make him happy. (I must say I was glad he said he did not want me to do the same and that I would not look that great bald) We will all be there as a family on March 16th to watch my husband get his head shaved and would love if anyone joined us. Joey has his own page on the St. Baldrick's website if anyone should want to make a donation in his honor. (A big thank you to those that have already found the site and have done so!) I k now there are so many wonderful charities that pull at our heartstrings, so please do not feel you must.
Here is the link to Joey's page: http://www.stbaldricks.org/
Once again, I thank you for your prayers & support for our entire family.